Liv Nixon sits down with Jayne Gershkowitz, Chief Patient Advocate at Amicus Therapeutics. Jayne has over 17 years of experience in the world of rare diseases and patient advocacy, and her passion for improving the lives of individuals and families living with rare diseases is truly inspiring. Join Liv and Jayne as they discuss the importance of hope, compassion, and empathy in challenging times, and how a holistic approach can make a difference in people’s lives. Don’t miss out on this insightful and uplifting conversation. Subscribe to This Girl KAM and stay tuned for more episodes featuring fabulous women in pharma.
00:01:18 Jane Gerchkowicz’s journey from journalism to patient advocacy.
00:07:15 Women faced challenges in corporate communications.
00:13:16 Importance of communication in healthcare.
00:18:08 Advocacy and education in genetics.
00:26:21 Patient advocacy is crucial.
00:30:23 Importance of patient-centered approach.
00:36:13 Patient advocacy is evolving and expanding.
00:42:43 Collaboration is key for advocacy.
00:51:04 Ethics of gene patenting.
00:54:46 Importance of informed consent.
01:00:50 Importance of genetic counseling
01:06:41 Importance of patient advocacy.
01:14:11 Patient advocacy is essential.
01:18:38 Building something that makes a difference.